A Participation Model for Identifying Young People’s Emotional Support Preferences

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Descripción


July 2014- 4 young people


Repeat, using vignettes and consensus from February as basis for discussion
Scrutiny of conclusions from February group
Repeat consultation and ranking method
Refined conclusions


Participative Methods
Percy-Smith, B. (2010). "Councils, consultations and community: Rethinking the spaces for children and young people's participation." Children's Geographies, 8(2), 107-122.
Department of Health. (2012). "Government response to the consultation: 'Liberating the NHS: No decision about me, without me' ", Department of Health, (ed.). City: Crown Copyright.
Lavis, P., and Hewson, L. (2011). How Many Times Do We Have to Tell You? A Briefing from the National Advisory Council About What Young People Think About Mental Health and Mental Health Services. Public Health England.
Miller, D., Shewchuk, R., Elliot, T. R., and Richards, S. (2000). "Nominal Group Technique: A Process for Identifying Diabetes Self-Care Issues Among Patients and Caregivers." The Diabetes Educator, 26(2), 305-314.
Yardley, L., Morrison, L., Bradbury, K., and Muller, I. (2015). "The Person-Based Approach to Intervention Development: Application to Digital Health-Related Behavior Change Interventions." Journal of Medical Internet Research, 17(1), e30.

Conclusions
Adapted nominal group technique engaged young people and generated good quality data
Findings confirmed by young people
Supports next phase: Use of participation methods to develop an intervention targeted to local needs and tastes
Raising awareness
Advertisements: toilets/buses/newspapers
College tutors
College intranets with announcements, contact numbers, links to websites
Trustworthiness of information – e.g. UOM logo NHS logo
Young minds – partnership

Choice
Who, Where, How
Apps with reminders/tracks how well you're doing
Find ways to practice how to talk about emotions
Talking online (e.g. skype without video) -preparation for a face to face appointment
Well-designed website with login section (approved by school/college)


Score
Rank
Support young people to address their problems
27
1
More recognition of emotional health problems in settings where young people gather
26
2
Young people need better access to specialists
22
3
Professionals could improve their skills.
18
4
Support for young people could be available in informal settings and/or with non-health professionals
7
5
February groups:
Ranked priorities
A Participation Model for Identifying Young People's Emotional Support Preferences

Sarah Kendal, Linda Milnes,
Steven Pryjmachuk, Hannah Welsby
& The Young People's Research Group
What is the problem?
UK: 10% of 5-16 year olds has clinically significant mental health problem
Global data:10-20%
It is time to ask young people what they think
Participation methods?



Purpose of the study

Find a method for meaningful consultation with young people aged 16-18 years
Generate knowledge about their emotional health needs
Influence service development

Participation of young people
We used personal contacts to access 11 interested young people aged 16-18 (non-clinical sample).
Young people as researchers
Two phases of data collection
and analysis
(Feb and July 2014)


Research Team: UK Northern cities
Huddersfield1, Leeds2 and Manchester3
Academics
Sarah Kendal1 PhD, Linda Milnes2 PhD,Steven Pryjmachuk3 PhD
Expert by experience
Hannah Welsby1 (drama student/expert by experience)
Young Researchers Group
Shafeeah Chowdhury, Annaruth Davis, Charlie Donnelly, Marie Parkin, Rida Shah, Joy Windle



February 2014 – 7 young people
Introductions, written consent, information exchange
In 2 small groups, discussion using vignettes
Whole group discussion

Spring 2014
Data collection and analysis

Summer 2014
Data collection and analysis
Evolving ideas


Study conclusions
Introduce concepts
List of possible solutions
Support young people to address their problems
More recognition of emotional health problems in settings where young people gather
Better access to specialists
Professionals could improve their skills
Support for young people in informal settings and/or with non-health professionals


Contemplation, ranking,
discussion, consensus
In silence, individuals decide on a ranking order
Individuals place scores on each of the 5 items
Facilitator displays the scores
Whole group discusses the ranking
Repeat ranking exercise and agree consensus

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Generating data in focus groups
Group analysis of data
Review of the findings
Reviewing the study report

5

Adapted nominal group technique
Lili has felt depressed since she was 10 years old. She used to think this was normal.
She's now 16
She thinks she should do something about it but does not know where to start.

6
, personal contemplation, whole group consensus
(leading to progressively refined conclusions)

7
Early support in school (mental health/study support)
Education for teachers
Alternatives to medication
Mental health clinics for the under 25s
Use the media to spread good quality information
Safe space for online discussion

8
Two priorities for supporting young people:
Choice
Raising awareness

11
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1
Using consultation to develop support for young people:
School based supported self-help (Kendal et al. 2011)
Pre-consultation guides for young people with asthma (Milnes et al. 2014)
Support for school nurses (Pryjmachuk et al. 2012)
Teaching student mental health nurses about service user perspectives (Welsby 2014, 2015)

2
Profound and long lasting impact
Public health and clinical concerns
We need good quality information and support for this age group.
Young people could participate in decisions about them
We need to understand young people's views
Therefore we need suitable research methods.


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19/08/2015

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